Caregiver Help for Alzheimer's Patients

Many people that either have Alzheimer's Disease themselves or are caring for someone with the disease will face many difficulties adapting to the changes that are coming or are already happening.  You will be looking for help in learning more about what to expect, how you will manage financially, what legal matters should be handled and where can you turn for help.  If you have not located the Alzheimer's Association web site, you need to check it out.  It provides an endless amount of knowledge and guidance through the process.  I discovered and explored this web site after participating in the Alzheimer's Walk in September 2011.

I encourage you to click the above image to visit this site; the link will take you to their CareFinder page where it can help you find assistance in your area.  Explore the site and let me know what you think...

Maintain the dignity!

How do we maintain dignity as we Age with Ease?  This can be answered in two ways: from the point of view of the aging adult or from the point of view of the caregiver of that aging adult.  I am going to speak on the point of view of the caregiver.  In my years of caring for older adults, I have seen all different kinds of approaches on this matter.  Some work, some clearly do not.  I think the best way to answer this question is fairly simple: How would you want to be treated?  It can be hard to put yourself in the role of the other person and know how what you are saying or doing is affecting them.  By simply asking yourself how would I want to be treated if it was happening to me, you can better provide assistance.  This will, in the end, make caring for someone easier because they will feel respected.
As I write about this topic there are certain caregivers that come to mind.  They so easily and naturally provide this respect and dignity with very little effort.  They are spouses or children that are providing care.  They are dealing with different types of conditions: dementia, Parkinson's, ALS or a stroke, just to name a few.   In observing them, the main thing I notice they all do is continue to keep their loved ones involved in their lives and the things they always enjoyed doing.   They don't stop living because of the illness.   This can take some creativity.
Some examples of what I am talking about:
1.  Let's say your husband has dementia. Chances are, that is his main health problem and he's probably still pretty physically able.  So when winter comes around, can he still shovel snow? Yes!  When fall comes around, can he still rake leaves? Yes!  When spring comes around, can he still help mulch the flower beds?  Yes!  When summer comes around, can he still help with yard work? Yes!
While these activites may need you to supervise him discretely, he is still physically able to participate in your life.  It will make him feel useful and satisfied that he can still participate.
2.  Let's say your wife has been diagnosed with Parkinson's.  You are noticing that she is having trouble getting dressed and with her medication management but you feel uncertain about how to discuss this topic with her.   These situations can be delicate because you want to be sure to present the problems you are observing just as that, observations.  You don't want to make her self-conscious about her abilities.  So what do you do?  Be upfront and just talk with her about it calmly; communicate with her as you would about anything else. Ask her what she needs to make her life easier.  Decide together how to proceed, offering suggestions.  Solutions that make her day easier could be very simple at first.  Maybe laying her clothes out for her or rearranging the set up of your bedroom or bathroom.  Preparing her medications with her for the day of the week in pill boxes.   Whatever you do, don't let her continue to struggle and pretend that you don't notice.  It never feels good to fail day after day doing simple tasks or to feel alone in the process.   You need to remember that she can still participate in the decision-making process in your lives even if she has Parkinson's.
3.  Let's say your father has suffered a stroke and has come to live with you and your family in your home.  This is a huge adjustment for everyone!  As a result of his stroke, one of the problems is that your father has difficulty with his speech - he is hard to understand but yet is still very alert and oriented.  Speech difficulties can be especially frustrating for stroke victims and their families.   You notice that he seems depressed and has withdrawn from the activities that he used to enjoy.   It is important to break that cycle and to break it as soon as possible.  He needs to be reminded that he is still able to participate in life.   Look for useful things that he can do around the house to make him part of the household.  Find a chore or two that he can successfully do and is responsible to complete.  If he was a people person before and now sits at home all day, consider an Adult Day Center or Senior Center.  Try to involve him is your lives as much as possible.  People need to feel useful and have a purpose. Most importantly, you need to discuss this with him and decide together how to proceed.  If he feels like you are making decisions for him, he will most likely resist and then have trouble trusting you if the future.
These are just some examples.  Any solutions, of course, are going to be unique to your family.  If you are struggling with finding a solution for your unique problem, feel free to send me a message.
Aging with Ease cannot be done without maintaining dignity!

HELP! Caregivers Need To Reach Out.

When is it time to ask for help?  In my work, I am asked this question so many times, you would not believe it!   Whether it is Dementia, Parkinson's disease, ALS, just plain getting old or any other ailment affecting your family the question eventually always comes...  When should I look for outside help?
As a primary caregiver of someone you love, this can be a very difficult question to ask yourself, let alone someone else.  As a caregiver you may feel guilty about not being able to handle it all, or that in someway you have failed by admitting that you need help.  Here are a few things that you, as a primary caregiver should ask yourself:

1. Am I physically exhausted and overwhelmed by the situation?
2. Do I feel like I never have time to myself to just relax, read a book or do anything that is just for me?
3. Do I dread each day and what it may bring?
4. Do I view my loved one as a dependent and have trouble enjoying time with him/her?
5. Is my health suffering because of the needs of my loved one?

If you answered "Yes" to any of these questions you should begin to look for information and services that are available in your area.  I would also encourage you to be honest with the people closest to you about the true reality of your situation.  Many times caregivers try very hard to make things look as though everything is fine, when their reality is very different.  It is a way of coping for the caregiver to try to keep things the same for as long as possible.  I don't know anyone who does not try to avoid an unpleasant decision for as long as possible before facing it head on, especially when dealing with a progressive disease or condition with no cure.
In most situations the people close to you want to help and are just waiting for you to open up to them.  That is the best place you can start to reach out.  Making these decisions alone can be overwhelming and when you are already trying to deal with the everyday chores of being a caregiver that can feel like one more thing to do when in fact finding help can actually allow you to become the spouse, daughter, son, friend, or sibling again.
I started this blog to try to help families and caregiver find what it is the right path for them.  There are no right or wrong decisions about the path you choose except to do nothing.  If you have never dealt with anything like this before, how could you possibly know about what health services available- they certainly do not make them easy to find sometimes!  I will be posting more blogs about each of the services available out there and trying to give you some direction.
If you have specific questions about a need you may be having; feel free to write me and I will try my best to steer you in the right direction
The goal of course is Aging with Ease!